What bugs you most about having FMS

OK with me its the lack of energy, I can just cope with the pain and I know lots of you have it more. The need to rest plays the biggest part in my life!

Hi Enya,

The most annoying part for me is constantly feeling spaced out and woozy. The pain never lets up you just have to get used it. I find that pacing myself, not overdoing things and doing an action list for the week helps me organise my day, housework, etc. this way I'm less likely to forget anything.

Jo

it can have such a negative affect .. i feel like i work sleep sork sleep etc and my life has just slowly disapeared .. not very fair is it ...

Looking fine and not being able to function properly.
The lack of other peoples understanding.
Feeling like i have flu 24/7

Here here Berni although I have to say I think I look awful at the mo, I have always looked tired anyway and the pain drains away the colour from my cheeks. I think people can see it and you do look different its just that you always look the same and they get used to the way you look. They dont want to see it they just think we are miserable. I struggle to smile sometimes and the minute anyone gets negative around me I run, Fibro or no fibro I just can not hack the emotional strain of bad news or sadness.

Enya xx

I can and am living with the pain, well most of the time
of course with the aid of some pretty heavy medication
Still hurts, I don't know why !
BUT
What bugs me most is.
Fatigue.
I can,t do hardly anything anymore.
My Bum hurts from laying in my bed.
I have got so little social interaction I think I may forget how to communicate
Oh Allah I am so Pissed off with it.
Fatigue yes thats it

Peace Mr N Smialls

yes here her the fatigue is the thing that drives me nuts .. everything hurts more and i get incredibly clumsy.. but alas .. i feel if the pain goes then so will the fatigue .. well thats wish ful thinking

and when i start feeling like my 12 year old daughter is looking after me .. bless she has massaged my feet this morning .. and she has told me i am not to go to work tomorrow .. hey whats going on????

The tiredness does it for me the rest i can just about cope with but being so tired just wipes me out and makes me feel rubbish